Nan Mustard's Recovery

This blog is a record of Erin (Nan) Mustard's recovery.

Wednesday, June 28, 2006

Wednesday morning report

Dear Friends,
Nan and I made it through the night. Nan did not sleep well last night and ended up watching TV for part of the night. I slept on the cot in the ICU waiting room and did fine, wasn't the Hilton but the room was dark, the bed was warm and the first time I woke was 4:30, then 5:30 and finally around 6 I got up. People were starting to be noisy in the hall and the room was needed for regular people who were visiting ICU patients. So up and in to see how Nan did. Dr. Greenberg, the covering surgeon was here and when she told Nan that probably by the end of the week she could drink and begin eating I thought Nan's heart would break. Her face was a mask of discouragement and defeat. Nan knows inside that she needs to avoid pnemonia which could happen if her throat is not ready yet to swallow properly but knowing it intellectually is one thing but accepting it after 3 weeks of nothing is totally different. Nan is a tough cookie but even people with extremely strong willpower can have moments of doubt and some down time.
If she could sleep well at night this process of recovery would be enhanced. It is true that she had several segments of sleep time yesterday sometimes sleeping for up to a couple hours at a time. So she is getting some rest.
Loren is our nurse today and she takes such good care of Nan. She is gentle, kind, professional and like Amy can insist that Nan stay up longer in the chair or get up to walk and Nan will do it. At this moment Mary is giving Nan a 3 and 1/2 hour dialysis treatment. The hope is that this may be one of the last needed as the kidneys seem to be doing a bit better. It now appears that Nan may be transferred to the main floor if they can find a bed in the area where Dr. Greenberg thinks is right for her. She will also have the barium throat study to see how her throat is swallowing at some point. It was supposed to be yesterday but things don't always happen on time here. Nan has a pain going on in her left leg, something that has been there but is worse today so Loren will let the doctors know. We need to be especially careful right now since she had a couple days without heprin and she could be getting a blood clot. Oh boy the challenges facing this dear woman.
She is now well into her dialysis and the machine is now behaving. At first the lines were not working well and so it was start and stop. The lady today is not impressive for her personality like all the other dialysis people have been. She is competent just not very social. To get things working she took away Nan's pillow but after awhile I noticed that Nan had moved the pillow back into place. Dialysis makes a person cold since it has a unit of blood out of the body at room temperature at all times during the 3 and 1/2 hours so we need to keep Nan's blankets around her to keep her warm. Thats my job.
I think we need prayers today for us to stay the course. It has been a long time and Nan and I are not patient people at all. We are used to doing things, not thinking about them and just lying here for days is really hard to take.
Dana and Marilyn will arrive between 9:30 and 10 this morning and that should give Nan a boost. We appreciate how supportive our families have been to us and some of you have been so wonderful in your daily emails of encouragement and hope. The cards are carefully read and set up in the room and phone calls are nice too.
We ask that you remember Rick today as he faces his medical day in Houston and also our friend Judy.

Thanks for your prayers and concern,

lov
tim and nan
PS no new room number yet but the mail room will find her where ever she is moved.

6 Comments:

  • At 5:50 AM, Anonymous Luella said…

    Tim and Nan:

    Things are going crazy here. Change seems to be the watch word at my house. But "inch by inch anything is a cinch." I'm living by that and I think your report of Nan's progress proves that, too.

    Still praying for your situation(s) and wishing I could do more.

    The Psych consult/visit might be a plus, they can help with visualization of a healthy body which helps the mind rule the body. Consider contacting a local pastor to drop in for occasional visits too.

    Love seeing your progress, Nan. I know things are slow, but the snail eventually reached the goal and so can you!

    Luella

     
  • At 7:18 AM, Anonymous Bob & Carrol said…

    Hi Mustards,

    Good to read Your blog this morning and We hope that Nan will remain in a positive attitude even though We know how hard it is to do when things do not go as planed or promised. We remember Our Days at St. Joseph's in Stockton and likewise the long days of tests and waiting at U.C. Davis. It seems like what they say will take place is never what happens and for sure not when it is supposed to be done.

    We do hope and Pray for You to have a good day. We are again having wonderful weather with cooling Delta Breezes, temp today is forecast to be 85/90 You both know how nice that is here.

    We will ask the Lord that today things move on schedule as promiced. We will pray for that. The Lord listens to ordinary requests too.

    May rich, warm, comforting Blessings and Healing continue for You today.

    We hold up Your dear friends in Prayer as You request. Truly there are many in need of special help from above.

    Much Love ,

    Bob & Carrol

     
  • At 8:54 AM, Anonymous Anonymous said…

    Hi Tim and Erin
    Happy to hear that Erin will be leaving ICU today. Erin you are getting closer to coming home and we welcome you back with open arms. Erin hang in there the hot tea is coming very soon, you have gone through allot but I know you can do it.

    Love you both

    Mary Puente

     
  • At 8:21 AM, Anonymous Anonymous said…

    I'm just showing Mom how to send a msg.

    Troy

     
  • At 8:24 AM, Anonymous Anonymous said…

    Nan, I'm eating a whataburger for you and can't wait for you to get here so we can go to our favorite eating place. Stick to the soft stuff for now. Our time will come. Hope all is on the upward swing and stays there.

    Love you special,

    Sharon

     
  • At 8:24 AM, Anonymous Anonymous said…

    Nan, I'm eating a whataburger for you and can't wait for you to get here so we can go to our favorite eating place. Stick to the soft stuff for now. Our time will come. Hope all is on the upward swing and stays there.

    Love you special,

    Sharon

     

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