Nan Mustard's Recovery

This blog is a record of Erin (Nan) Mustard's recovery.

Sunday, June 25, 2006

Its been a good sunday!

Dear Friends,
Its about 6:40 here in Nans room at the Brigham and Womans Luxury Suites. This has been a good day for the first lady of recovery. Amy has been kind enough to help Nan sit up in the chair three times today, each time Nan took several steps to and from the chair, helped by moving her legs over the edge of the bed and held her head up high while in the chair. Her improvement in sitting up today compared with the prior two days is nothing short of remarkable. She is making faces, smiles, uses her eyes and even speaks words using her soft voice. Her skin tone is excellent and she looks great with her newly washed hair and beautiful face. She keeps trying to con one of us into letting her have hot water or hot tea but until she passes the test of swallowing she cannot have any water, ice chips or tea. The reason, something could get into her lungs causing pnemonia. She has used every trick in the book to try to get her way and is not very happy when she does get her tea or hot water. For example, I was praising her for her hard work and strong will. She had me leave down and whispered, if I am doing so great then give me hot water. So Amy relented a bit, poured a cup of hot water and using a green sponge on a stick gave Nan a taste. Yet even with that she coughs so she may not be ready yet for swallowing. Her throat was so damaged by the 15 days of respirator and suction tubes that it may take a few more days to heal up.

Nan did new things today, she read all the cards that have been mailed, read some emails, read a little of the newspaper and watched some TV shows. In between she has slept, talked on the phone and interacted with Amy and me.

I am so proud of her for her accomplishments, her courage, her sense of humor, her willingness to work hard and her demands that we get ready to fly home!! This is no usual lady if there is any such thing. She is a fighter and has extremely strong will power. She expresses great kindness to me and has urged me to sit on the bed, she thought there was enough room in the bed for me!!

Hanging over this happiness and progress is the threat of the bleeding from her GI tract. Amy has charted the colostomy output today and has determined that the amount is less yet the bleeding issue remains a huge concern of everyone involved with Nan's case. We solicite your prayers seeking God's intervention in her behalf. God has stopped her bleeding on the night of the original surgery as people prayed and we desperately need Him to do it again. If it sounds like I am a broken record it is because this is the most important issue she faces at this time.

I have learned that a recovery from a difficult surgery is not linear. It moves in fits and starts, one day is amazingly good and the next is disappointing and depressing. Some medical issues will take a very long time to solve while others will be finished by the time we leave the hospital. We remain firmly convinced that we are where God wants us to be, that this surgery is no accident, that we are in the hands of the worlds best GIST experts both at Dana Farber and here at Brigham and Womens, that our surgeon has hands blessed by God and that the nursing care in this ICU is the best short of heaven.

We both long for the day we can come home and be with our family, go eat with Nikki and Steve, have Keanna over for sleepovers, go visit the cool weather surrounding Jason and Jo by the ocean. We long to board the plane, however we have many bridges to cross still and a recovery process to complete. Your support with prayers and donations is making this whole process possible and winable. We will never forget what you have done to help us through this impossible situation.

love from the east coast

tim and nan

ps please ask God to heal the bleeding!

11 Comments:

  • At 5:39 PM, Anonymous Roger and Carol said…

    Hi Tim and Nan,
    I'm so glad it has been a good day for both of you! Keep up your courage.
    Our "buyers" are here and doing their due diligence. We're still on schedule. Today he spoke of closing early. That's ok with me!

    Love and prayers for stopping the bleed.

    Roger and Carol

     
  • At 6:10 PM, Anonymous Bob & Carrol said…

    Hi Mustards,

    We are elated by the good responses that Nan is showing to Us all. Her Medical Team is to be commended for their efforts and We thank Our Lord for His manefested Power working in Our Dear Nan.

    We will keep the prayer line open and let the Lord Stop the bleeding.

    Looking for more good news in the Morning from Room #59.

    Bob & Carrol

     
  • At 8:11 PM, Anonymous Anonymous said…

    Hi Tim and Erin,
    Great news that Erin had such a good day. Keep up the good work and you will be home very soon Erin. I will be waiting for you

    Love and prayers

    Mary Puente

     
  • At 8:48 PM, Anonymous Anonymous said…

    Tim and Nan,
    Great news that Nan is making such steady progress. Although, it appears that it isn't nearly fast enough! Nan, try really hard to let this be in God's time, not yours. As someone who has extreme issues with control, I know that is no easy task! Nan, you're in awesome hands, HIS hands. We're praying for you here in OKC. Stay strong and keep fighting for those plane tickets. You'll be jetting home before your know it! God's blessings.
    Jani DeHart

     
  • At 9:19 PM, Anonymous Anonymous said…

    Dear Nan & Tim,
    Your report sounds so much better each day. We are so thankful and praise God for His help, and we all will continue to keep you both in our(church) prayers.
    Delmy's four children were here for Friday night and all day Sabbath. They are my adopted family, and are a joy to have around. They love coming to Grandma Fern's house. The neighbor let them use their pool for an hour Fri. I take them to Sabbath School and Church. Usually I have the girls one weekend and boys another.
    Connie came here to get out of the heat (108) today, and I asked her to stay all night. I just washed the sheets and towles, so the bed is ready.
    Connie just went home to get her PJ's and pills. She has no air conditioning in an upstairs apartment. Just a fan. She said to tell you Hi. Well I will sign off now.
    Love, Fern

     
  • At 9:26 PM, Anonymous Marilyn in Lincoln said…

    Good evening Tim and Nan - wonderful news for today's adventures. Nan, you behave and do exactly what they tell you to do and very soon you'll be on that airplane and walking into your own home, riding up your little chair lift and having fun with Keanna and the kids. When I think of your condition last week and now this week, you've made huge strides!!! I'm praying for NO blood. Tim didn't mention the kidney's - hope all is well there. I'll just tuck in a little prayer for those to keep working too.

    Love you both, Marilyn

     
  • At 9:40 PM, Anonymous nhuffman@tusd.net said…

    Hi Tim and Nan,
    Your news is so uplifting each day. You all are constantly in our prayers and I know God has has wonderful plans for you in the future. I wish we could come see you, but your e-mails are so good and detailed that I feel we are almost there. You hang in there. Love you, Nan and Wes.

     
  • At 9:41 PM, Anonymous nhuffman@tusd.net said…

    Hi Tim and Nan,
    Your news is so uplifting each day. You all are constantly in our prayers and I know God has has wonderful plans for you in the future. I wish we could come see you, but your e-mails are so good and detailed that I feel we are almost there. You hang in there. Love you, Nan and Wes.

     
  • At 10:41 PM, Blogger Gerry & Barb said…

    Hi Tim & Nan,
    OK Nan, now we are going to have to start saying "behave yourself and obey your nurse." You'll get water and food when it's time. Your progress is sounding soooo much better! We've had a very HOT day but in the house we are nice and cool ... thank goodness for the person/s that invented air conditioning. Thank you Tim for the detailed blogs. It sounds like you are walking back to your hotel room quite late at night -- is it spooky or do you feel safe? During the night I will be praying for Nan's bleeding to stop and to have your Angel sit close by to protect you and comfort you. Your nurses sound nice and to think that you got your hair washed is enough to make you feel good. Probably you'll be needing a hair cut soon. Keep up your courage and remember that you are both loved. Friends forever! Barbie

     
  • At 6:45 AM, Anonymous Anonymous said…

    Aunt Nan,
    Keep up the good work! It won't be long before you can visit and have Whataburgers with us!
    Shay

     
  • At 8:01 AM, Anonymous Anonymous said…

    Hi Tim and Nan,
    How wonderful to hear the wonderful praise reports and to know that Nan's "keep on keeping on" spirit continues to prevail. I remember you saying in your testimony at SOP (paraphrase) "when things don't go right, you just look for the next door to open, the next step to take". Nan you are so very precious and such an encouragement to anyone that faces trial.

    You and your family are in my prayers each day, several times a day. Thank you for giving us specific prayer requests. They have certainly given us cause to praise Him for His answers.

    God's continued blessings and healing.

    Phyllis

     

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