Friday evening Home at last
Dear Freinds and Family,
Finally it is friday evening. We rolled out this morning finally around 7 after being awake at 5 and 6. Nan woke with pain and choking on nasal drainage. We came down about 7:30 and got ready, left for the Dr. and Concord at 8:17. Traffic was light and we made it in an hour. Dr. was helpful and listened to Nan's concerns. Nan's pain patch was moved from 25 to 50. We found out that the 25 level is the lowest one can have and it has not begun to solve the pain Nan has been experiencing. We hope this helps. After we left the Dr office we went directly to the hospital to type and cross for the blood transfusion. We are supposed to go in at 9 in the morning for the transfusion and for a CT scan. Past experience has taught us that we will be there all day in the process. At least Nan will get a boost of energy. Her hemoglobin was 8:1 today and she is usually very tired at anything below 9. So it is time to get some blood going. Hopefully that will help her feel much better in a day or two. She has not had a bite to eat all day today, so close to nausea and extreme fatigue, no interest in eating. We did have our normal hot drink this morning but that was it food wise. Right now I am going to prepare a small glass of chocolate milk so she can take her evening Gleevec. Nan tolerated the ride to the Dr. and back better than I had anticipated. Her seat has a warmer in the car and she was able to find a fairly comfortable place there in the car.
After putting her to bed this afternoon I managed to catch up with an appointment that was sort of hanging for a sale over in Stockton. I drove over quickly and inspected the home, shot the comps and then came back home. Then to Brentwood for the prescriptions which included the pain patches, Safeway for some needed food items and home again. Nikki and Keanna came over and made dinner. Dinner was very good and we all enjoyed interacting. Keanna insisted on butterfly and eskimo kisses when they left. Fun, fun having her and Nikki here. Helps Nan feel better too.
Tonight we've changed the dressing, readied the new TPN bag and now have it hooked up feeding Nan her nutrition. Something must be working because she weighted 107 at the doctors today, yea! Thats 10 lbs up from her low point in the hospital a month ago. But this has been a very rough week for Nan. We hope the reason was the hemoglobin being low. It has certainly effected her like this in the past but that does not explain the nausea and powerful back pain. I have been praying off and on all day seeking God's help with her current health issues. How I long for her to prosper and begin to enjoy her life again. We have had some windows of hope but also lots of down time when she does not feel well.
Please pray that the transfusions will go well tomorrow, that the CT won't be too awful and that she can endure the whole day. Pray that God will watch over us and share His many blessings. We heard today that Nate is doing well and has made some new commitments to his Lord. We are so hopeful that he can find purpose and meaning in life. Steve must be better, with improving back since he has gone camping for the weekend with his guy friends, he hoped he would get better and it sounds like he did. Thanks for your prayers for both of these great guys.
Sending our love to each of you with grateful hearts.
love
tim and nan
Finally it is friday evening. We rolled out this morning finally around 7 after being awake at 5 and 6. Nan woke with pain and choking on nasal drainage. We came down about 7:30 and got ready, left for the Dr. and Concord at 8:17. Traffic was light and we made it in an hour. Dr. was helpful and listened to Nan's concerns. Nan's pain patch was moved from 25 to 50. We found out that the 25 level is the lowest one can have and it has not begun to solve the pain Nan has been experiencing. We hope this helps. After we left the Dr office we went directly to the hospital to type and cross for the blood transfusion. We are supposed to go in at 9 in the morning for the transfusion and for a CT scan. Past experience has taught us that we will be there all day in the process. At least Nan will get a boost of energy. Her hemoglobin was 8:1 today and she is usually very tired at anything below 9. So it is time to get some blood going. Hopefully that will help her feel much better in a day or two. She has not had a bite to eat all day today, so close to nausea and extreme fatigue, no interest in eating. We did have our normal hot drink this morning but that was it food wise. Right now I am going to prepare a small glass of chocolate milk so she can take her evening Gleevec. Nan tolerated the ride to the Dr. and back better than I had anticipated. Her seat has a warmer in the car and she was able to find a fairly comfortable place there in the car.
After putting her to bed this afternoon I managed to catch up with an appointment that was sort of hanging for a sale over in Stockton. I drove over quickly and inspected the home, shot the comps and then came back home. Then to Brentwood for the prescriptions which included the pain patches, Safeway for some needed food items and home again. Nikki and Keanna came over and made dinner. Dinner was very good and we all enjoyed interacting. Keanna insisted on butterfly and eskimo kisses when they left. Fun, fun having her and Nikki here. Helps Nan feel better too.
Tonight we've changed the dressing, readied the new TPN bag and now have it hooked up feeding Nan her nutrition. Something must be working because she weighted 107 at the doctors today, yea! Thats 10 lbs up from her low point in the hospital a month ago. But this has been a very rough week for Nan. We hope the reason was the hemoglobin being low. It has certainly effected her like this in the past but that does not explain the nausea and powerful back pain. I have been praying off and on all day seeking God's help with her current health issues. How I long for her to prosper and begin to enjoy her life again. We have had some windows of hope but also lots of down time when she does not feel well.
Please pray that the transfusions will go well tomorrow, that the CT won't be too awful and that she can endure the whole day. Pray that God will watch over us and share His many blessings. We heard today that Nate is doing well and has made some new commitments to his Lord. We are so hopeful that he can find purpose and meaning in life. Steve must be better, with improving back since he has gone camping for the weekend with his guy friends, he hoped he would get better and it sounds like he did. Thanks for your prayers for both of these great guys.
Sending our love to each of you with grateful hearts.
love
tim and nan
posted by Tim Mustard @ 9:30 PM
2 Comments:
At 4:34 AM,
Anonymous said…
Good Morning,
I am so thankful that Gerry and Barb will be with you this afternoon. That makes me feel better. I know that their friendship is most precious to you both. Thanks to you both for being there for Nan and Tim, they love you dearly!
I'll have a small gathering for lunch after church today, then I'll hopefully take a long nap. I'll call you this PM to find out what has gone on.
Love and prayers, Sharon
At 4:43 AM,
Anonymous said…
Happy Sabbath! and I do hope it is a good day for you. I thought your CT scan was yesterday. We hope it brings good news this time. You could use some.
I'm so glad you have such good friends as Barbie and Gerry to come and help you. I know they are special to you and give you a lift in so many ways. Now that's a true friend who will come help clean out your garage!
Today we will pray for strength for the day, no nausea or pain, keep the tumors under control and a peace from knowing God is near and loves you very much.
Have a blessed day~
Love and prayers from NC ~ Carol
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