Nan has a very long day
Dear Ones,
Nan is waiting for me to blog and then we will go up to rest. Starr kept both of us warm last night and we worked a bit this morning and Nan used the microwave towels to get ready for her big day. We left about 11:20 for SF. Nan rode in the back in the bed and it took awhile for her to get warm. We arrrived and parked at UCSF Mt Zion and found the desk to sign in for the CT scan. Then they tried to figure out what to do next, creatines were 1.98 which is the best they have been since Boston but too high for IV contrast. Then they debated having her drink regular tap water or chalky contrast stuff and water won out. They they told us we would have to go across the street to a brand new machine. They wheeled her over across traffic and the cold to a very nice group of people. Nan drank down the 2 8 oz cups of water and was wisked to the CT machine. She says it was so nice, instead of having to hold still for a long time while the old machine worked the new machine just took two shots and they were done. Then we went to the garage, paid the fee and drove down 101 to Palo Alto to see a tiny little house for a reverse mortgage. Nan had chosen to sit in the front seat after the hospital and dozed while I worked. Then she helped me with the map and we found the comps and shot photos of them. Then we started home, she decided she needed to lie down so we pulled over and make the switch. As we were driving toward the freeway we spied a Cheesecake Factory Resturant, turned around and went back to get take out. nan had some avocado egg rolls which she dearly loves and I had them make me a cheese sandwich. We sat in the car and ate while listening to XM Christmas music. Then we started home for what turned out to be a 2 hour commute, traffic everywhere, slow, slow. Finally we made it home, built a small fire, fed the fish, prepared the TPN, ran some research for tomorrow and watched Shark and CSI while working.
We are always a little tense around the CT scan time. I'm not sure when we will find out anything from this one but we need to get a copy on CD and ship to Boston as soon as possible for their take on the findings. nan expects that Dr. Meng will move forward with ocluding the right ereuter to get the leak stopped next week. We also found out today that Nan's hemoglobin is already down to 9.4 as of monday. Sure wish we could get whatever is eating red cells to lighten up. Now we really need to push the oncologists hard to get Aranas a procrit like drug that helps the body build red cells. So far no luck with the doctors and insurance.
Tonight we are thankful to be home, warm and safe. Nan has handled the day very well in spite of being very tired. She is a very brave lady, elegant, lovely and she is wonderful. Tomorrow night we get to see Keanna doing her thing. We can't wait.
Sending love, please pray for Nan's recovery.
tim and nan
Nan is waiting for me to blog and then we will go up to rest. Starr kept both of us warm last night and we worked a bit this morning and Nan used the microwave towels to get ready for her big day. We left about 11:20 for SF. Nan rode in the back in the bed and it took awhile for her to get warm. We arrrived and parked at UCSF Mt Zion and found the desk to sign in for the CT scan. Then they tried to figure out what to do next, creatines were 1.98 which is the best they have been since Boston but too high for IV contrast. Then they debated having her drink regular tap water or chalky contrast stuff and water won out. They they told us we would have to go across the street to a brand new machine. They wheeled her over across traffic and the cold to a very nice group of people. Nan drank down the 2 8 oz cups of water and was wisked to the CT machine. She says it was so nice, instead of having to hold still for a long time while the old machine worked the new machine just took two shots and they were done. Then we went to the garage, paid the fee and drove down 101 to Palo Alto to see a tiny little house for a reverse mortgage. Nan had chosen to sit in the front seat after the hospital and dozed while I worked. Then she helped me with the map and we found the comps and shot photos of them. Then we started home, she decided she needed to lie down so we pulled over and make the switch. As we were driving toward the freeway we spied a Cheesecake Factory Resturant, turned around and went back to get take out. nan had some avocado egg rolls which she dearly loves and I had them make me a cheese sandwich. We sat in the car and ate while listening to XM Christmas music. Then we started home for what turned out to be a 2 hour commute, traffic everywhere, slow, slow. Finally we made it home, built a small fire, fed the fish, prepared the TPN, ran some research for tomorrow and watched Shark and CSI while working.
We are always a little tense around the CT scan time. I'm not sure when we will find out anything from this one but we need to get a copy on CD and ship to Boston as soon as possible for their take on the findings. nan expects that Dr. Meng will move forward with ocluding the right ereuter to get the leak stopped next week. We also found out today that Nan's hemoglobin is already down to 9.4 as of monday. Sure wish we could get whatever is eating red cells to lighten up. Now we really need to push the oncologists hard to get Aranas a procrit like drug that helps the body build red cells. So far no luck with the doctors and insurance.
Tonight we are thankful to be home, warm and safe. Nan has handled the day very well in spite of being very tired. She is a very brave lady, elegant, lovely and she is wonderful. Tomorrow night we get to see Keanna doing her thing. We can't wait.
Sending love, please pray for Nan's recovery.
tim and nan
posted by Tim Mustard @ 10:20 PM
2 Comments:
At 4:08 AM,
Anonymous said…
Good Morning from NC,
Today we woke to a very warm BR of 60 degrees and strong winds. So, you see, Tim, cold is relative! We have had very warm temperatures the last few days, but the cold is coming in today!. Last night's low will be today's high. The forecast calls for cooling temperatures today and 20 degrees tonight!!! Brrr. Now that really IS cold!!!
I'm glad your trip went well for you. It looks like there is a possibility of stopping that leak. Wouldn't it be wonderful to get rid of that extra bag and also give that wound a chance to heal! I pray that the latest CT scan brings good news.
I think we actually have a slow week end coming up. I can't believe it. We aren't telling any one though.... Next week end we leave!!!! Yea!!!! There's a break coming!!!! We NEED it!!!
Do have a restful, low pain, no nausea, no leaking, blessed week end. May you enjoy a visit or 2 from friends and a day without having to work ALL the time. I think we need to pray that Nan's body hangs on to those red blood cells and whatever is "eating" them is stopped. I assume the insurance is not paying for the transfusions any more. Maybe she can get on Social Security soon and that will help.
We love you guys and look forward to the blogs first thing every morning.
Love and Prayers ~ Carol
At 12:31 PM,
Anonymous said…
Hi Nan and Tim,
What a great improvement in the CT Scan procedure. I remember the last MRI I had on the new machine when I couldn't lay flat and could only elevate my knees to a point of discomfort and not beyond. I simply could not lie still because of the pain in my back. They couldn't even use a wedge under my knees as there wasn't enough room. Needless to say, it was not a good picture because of my movement.
We are so glad your trip went well and you were able to do a little work too. Now waiting for the the results of the CT will be hard, but we pray the they will be great.
It was so good to hear you were having less pain and able to get up and about, even with all your bags, and accomplish so much. You must feel so good about that. We were very impressed!
Please let us know if you are up to company this weekend, but we will understand if you need a real day of rest. Have a happy Sabbath!We love you guys,
Bob and Carrol
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