Nan Mustard's Recovery

This blog is a record of Erin (Nan) Mustard's recovery.

Sunday, July 22, 2007

Temperatures rising

Dear Family, Friends and GISTers,
Just now our aide has taken Nan's vitals and she is showing a 100.2 after a day with mostly normal temps. This is sort of disheartening for both of us. Where are these temps coming from? Dr. Benstock held off on the extra antibiotics to see if the basic one she is getting would solve the fevers. Well I expect that we will see new ones tomorrow.
This has been one of the best days in weeks. nan woke up at about 9:30 or so this morning and has been awake the entire day. Dana arrived mid morning with popcorn, pizza, ice tea and cheer. She is an amazing person and has helped so much since she has been here. Dana stayed for hours and she and nan traded places, Nan in the recliner and Dana in bed. Eventually Dana headed for home around 4 pm.
Before Dana arrived this morning Nan got up and walked to the door of the room, then to the bathroom door, then to the door and then back to the recliner. She walked strongly. Then she was up in the chair for about 4 or 5 hours. She managed that very well.
She has had some food here and there today and 4 Gleevec tables. She has decided that she will stop Gleveec as of tomorrow since she might get the new drug AMN by Friday. Her decision as we need 5 days after Gleevec before a new drug.
Nan just got a Lovenox shot and this time it is hurting a lot. Suddenly after a very good day nan is emotionally drained, is in tears and I have decided to stay the night. She is much stronger than she has been, very alert and awake.
This afternoon she got a nice call from Irene saying that she was coming up to visit. It was late in the afternoon and nan was concerned that she would not be able to get home before dark. Well Irene came and we had a very nice visit ending in a prayer before she left. We love this precious lady and appreciate her involvement in our lives.
We know more about the schedule for AMN approval this week. On Tuesday the review board gives its final approval, then Novartis signals the FDA for approval, then Novartis ships the drug overnight. So if all goes well and medical stuff rarely does, we could have meds by Thursday or Friday. God willing!
So good night dear friend. We are thankful for the many blessings we have enjoyed and long for healing and health. How I want nan to be able to see baby Timothy soon, how I long for her to feel better with less and less pain. Oh that Nan could get back on her feet.
I will spend the night here tonight and then head home in the morning. We are praying for orders, for God's help with the business. Seems like we have turned into very needy people but God knows our hearts and our needs.
Please pray for Nan, hours without fever, then fever, then pain, then pain lets up and then fever. Yet in spite of it all Nan is better and I could swear that the tumor is smaller than it was, Nan thinks I am crazy and perhaps I am, wishful thinking.

love to all

tim and nan


  • At 8:11 AM, Anonymous Anonymous said…


    Good morning! Let us rejoice and be glad. A little harder on Mondays than other days but still a wonderful day!

    Please don't forget that the fevers that Nan has are her body trying to attack the infections in her body. They provide valuable indicators about what is happening inside and then some action can be taken by the care givers to assist in the fight.

    I would have written more but I spent too much time looking at Timothy and his groupies! Very handsome!

    God bless,



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