Nan Mustard's Recovery

This blog is a record of Erin (Nan) Mustard's recovery.

Wednesday, July 12, 2006

Not a great day at all!

Dear Friends,
Nan would tell you this has not been a good day. Yes she has done the neccessary things, walked before breakfast, sat up in a straight chair for breakfast, at her Cream of Wheat and milk, some banana and a couple cans of Boost. Then back to bed for awhile. No signs of new infection in the cultures for the past 5 days which is good and a decision has been made to remove the port a cath which was placed in her chest several months ago. There is concern that a virus might be hiding in the tip of the cath. We were glad to see Dr. Morgan and in the course of conversation he mentioned that the ideal would be for Nan to remain in the area for 2 months of followup in case any other surgeries related to her surgery were needed. Nan was so saddened by that news, she just crumbled into tears. Poor Dr. Morgan who is the world's kindest man and so gentle hastened to let her know that they could refer her to a good surgeon at Stanford or UCSF for follow up and that he did not mean she had to stay here for 2 months. The crew came to install a new PICC line, sort of a permanent IV line with two access tubes that goes directly into the artery, this is to replace the port which is to be taken out tomorrow. Nan had hoped that they could put the PICC line in at the same time as the Port was coming out, that is while she was asleep so that really threw her for a loop. She is just so tired of being sick, of being weak, of being in the hospital, it is all getting to her.
When I arrived this morning she mentioned that she had spoken to Aunt Ann who is the worlds nicest aunt, a prayer warrior and close friend who lives in OK. Then she said she had also ask Sharon to come when she could. If Sharon can get away that would be a wonderful lift for Nan. Over the years Dana and Sharon have always been able to help her through her tough times and Dana has already served for weeks. Sharon is so busy and yet is somehow finding time to come visit Nan. We both really appreciate it.
While Nan sleeps this afternoon a much deserved rest I am out going to go over and inspect Whoville, I mean Youville, the rehab place that Nan is supposed to go to shortly. They put people with infections in rooms together but for $100 per day I can get a private room for her if one is available. Perhaps all those days of eating cheaply can mean we can afford a few days of rehab in a private room. We will see.
So I am riding the green line to Goverment Center and then transferring to the Red line which goes to Harvard Square which is near the Youville place. I just feel like I need to see it first and can then explain it to Nan. Some of the people who are pointing us to Youville have never even been there.
We really appreciate getting the cards that come every day, Nan grabs them and opens them, reads every word and then hands them to me. It reminds her that people care and have not forgotten her way back here in Boston. She is also reading her emails and emailcards now but so far has not written new messages out.
Well I am off, please remember Nan in your prayers that she can find more inner peace, muscle strength and relief from hurting hands, hurting tummy where the healing is taking place in the vacuum sponge, hurting back which no longer can have tylenol due to Gleevec and hurting neck.
The last time she walked today with the PT lady she went around the entire floor twice, that is about 500 feet so not bad at all. This was a a good clip and without any problems at all.
Sending our love, sure needs your prayers to make us strong.
love

tim and nan

4 Comments:

  • At 4:51 PM, Anonymous Anonymous said…

    Hey Guys,

    When you get to the end of your rope, you tie a knot and hang on! Just remember that "hang on" thing. You are doing great and I can't wait to see you. Because of you, I have become quiet good at this travel thing. Am bringing the famous "HAPPY SHOES" (You really don't have to wear them, just act like you want too) Will be so good to be there with you and see things first hand,

    I'll see you on Friday!

    Love you,

    Sharon

     
  • At 5:31 PM, Blogger Gerry & Barb said…

    Hi Tim & Nan, Keep your courage up, Nan. To you it probably seems like you have been there foreverin that hospital. But look at all the progress you have made. A walking miracle! Keep being thankful and think of something funny to laugh at each day! Laughter is good medicine. We leave early tomorrow for Yellowstone so in a few days I will call Tim on his cell for an update as we won't have access to the blog. It'll be nice to have Sharon there. I hope your rehab place will be a nice one. Remember that one I had to stay in when I smashed up my knee...not good. Keep eating bananas, they are soooo good for you. We'll be praying for your comfort and thinking of you both as we travel along. Oh, yes, Marilyn and Kim and family drove to Loma Linda today. Marilyn's computer is still down, I read her the blogs.
    Love, Barbie

     
  • At 5:31 PM, Anonymous Anonymous said…

    Hi Guys,

    Hey Erin just hang in there you are such a fighter. You are doing just great. I can imagine that it is hard for you but keep on trying real hard and if you have to stay a little longer it will be OK. I'm very glad that Sharon is coming to see you, please tell her I said Hello.

    Take care of yourselfs and I will talk to you soon.

    Love
    Mary Puente

     
  • At 5:58 PM, Anonymous Roger and Carol said…

    Hi Tim and Nan,
    We're back from our mini vacation. I thought of Nan so frequently. We have many memories together in Pigeon Forge! It was hard to come back to the grind, but we are sure God is leading us.

    I know you must be disappointed that going home seems to be delayed. Hang in there girl. You're doing great. I'm glad Sharon will be there with you for a while. She sounds like a breath of fresh air.

    Love and Prayers
    Roger and Carol

     

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