Good evening from John Muir Hospital
Dear Friends, Family and fellow GISTers,
We have spent the day at lovely Joh Muir Hospital in Concord. Overall it has been a good day so far. We arrived here at around 9 and Nan got her first unit of blood around 11:30. Then the plan was for the CT scan at 1 pm which turned into a 3 pm CT scan. Then back to the room for the second unit of blood. We started the day with a scare, Nan's temp was 102.7. However that was driven by her sitting in the window in the sunshine and sitting on the heated car seat all the way in. The temp has dropped during the day and is now normal again, yea!! About mid day Nan started to feel much better, talks about food she might like and is alert and feeling better again. They gave her a Zophram and 1/2 mg of dilautide for pain. She had a popsickle, lots of water and is ready to leave now. Soon we will hit the road. The minute they say we can leave we are out of here. Barb and Gerry just arrived at our house a few minute ago. We were sure we would be there by 6 but once again the hospital has taken longer to do its thing than we ever expect.
We are both nervous about the report from the CT scan. We have two copies of the CD one for the Dana Farber Cancer Institute and one for Dr. Warner at UCSF. We see him on wednesday in San Francisco and by then we will know the results of the CT. Fellow GISTers will recognize the stress and anxiety that comes from waiting to hear results from CT scans. Both for the patient and for the care giver.
We are looking forward to playing dominos with Barb and Gerry tonight. After we leave here we have an hour drive home. Nan is looking so much brighter than at any time in the past week, it is wonderful. She looks so lovely with her head on her special high density foam pillow, her blond hair swept back, her face in a grimace because she has seen something on the food channel that does not look good. So its time to dress her, get her in the wheel chair and head home.
It will be so nice to have Barb and Gerry with us, not just for the help but for the fellowship.
Please pray with us that God will continue to guide in all things for Nan. We pray for healing, for recovery, for tumor resistance.
love
tim and nan
We have spent the day at lovely Joh Muir Hospital in Concord. Overall it has been a good day so far. We arrived here at around 9 and Nan got her first unit of blood around 11:30. Then the plan was for the CT scan at 1 pm which turned into a 3 pm CT scan. Then back to the room for the second unit of blood. We started the day with a scare, Nan's temp was 102.7. However that was driven by her sitting in the window in the sunshine and sitting on the heated car seat all the way in. The temp has dropped during the day and is now normal again, yea!! About mid day Nan started to feel much better, talks about food she might like and is alert and feeling better again. They gave her a Zophram and 1/2 mg of dilautide for pain. She had a popsickle, lots of water and is ready to leave now. Soon we will hit the road. The minute they say we can leave we are out of here. Barb and Gerry just arrived at our house a few minute ago. We were sure we would be there by 6 but once again the hospital has taken longer to do its thing than we ever expect.
We are both nervous about the report from the CT scan. We have two copies of the CD one for the Dana Farber Cancer Institute and one for Dr. Warner at UCSF. We see him on wednesday in San Francisco and by then we will know the results of the CT. Fellow GISTers will recognize the stress and anxiety that comes from waiting to hear results from CT scans. Both for the patient and for the care giver.
We are looking forward to playing dominos with Barb and Gerry tonight. After we leave here we have an hour drive home. Nan is looking so much brighter than at any time in the past week, it is wonderful. She looks so lovely with her head on her special high density foam pillow, her blond hair swept back, her face in a grimace because she has seen something on the food channel that does not look good. So its time to dress her, get her in the wheel chair and head home.
It will be so nice to have Barb and Gerry with us, not just for the help but for the fellowship.
Please pray with us that God will continue to guide in all things for Nan. We pray for healing, for recovery, for tumor resistance.
love
tim and nan
posted by Tim Mustard @ 5:47 PM
4 Comments:
At 6:45 AM,
Anonymous said…
You sounded soooo good today. Am so glad that Gerry and Barbara are with you. It makes a world of difference to be able to share with people you are close to, you don't seem so alone and the problems shared makes the load lighter. Enjoy your time with them.
Looking forward to getting this audit behind me and arriving at your home. Make me a "to do list" and get ready for some action!
Hope you are both feeling full of God's Grace.
Love, Sharon
At 6:56 AM,
Anonymous said…
It's a beautiful morning here in Lincoln. I got up and ran to read the Blog - you did have a long day yesterday. So glad the transfusion has given Nan some energy. Wonder why she keeps needing blood, but so glad they have it and can give her some when she is a quart low here and there! I'll keep praying that the CT is clean with no tumors! I too know the stress of waiting to hear about the results of a CT and I'm not a gister.
Barb and Ger were ready for a couple days of visiting and helping out where they can. Have fun!!
I'll hold down the fort here and pray for comfort and healing there.
Love you two, Marilyn
At 9:04 AM,
Anonymous said…
Hi Mustards,
Good to read that things went well Yesterday in Concord. We will be praying for a good scan report and for Nan's energy to improve and of course less pain & nausea.
We spent several Hours Yesterday in Stockton at the "Greek Festival" . We have attended there every Year for many years and it is always a good time of Music & Great food to enjoy. This Year the weather added a wonderful measure of comfort to the festivities.
We are still thinking of an "Apple Hill" run later in the week , If You could join Us We would be pleased.
We are glad to read that Barb & Gerry are there for a bit, Good friends are a great therapy .
Carrol is feeling better now and is back to Herself in the awake department. She & Her Sister and even Me did some serious card playing last evening. "Sequence" was the game and I won! (that is not the norm), I'm just a player most times but last night the cards were falling my way for a change.
Have a good Sunday and the coming week too.
Much Love & Prayers,
Bob & Carrol.
At 8:01 PM,
Anonymous said…
It's been a very busy day here at Lakemont! Paulette is sick, George isn't doing well and we had 2 very dirty apartments to clean and one not so dirty to clean. Deb came over and cleaned the not so dirty one and made it really shine! I wish I could keep her all the time. But alas ~ she has a better job during the week. Roger has worked on the dirtiest one for 2 days and only finished the kitchen! Today he worked all day on the bathroom and bedroom in the other unit. How can people live like that? One was here for 8 months and the other for 4 years. I don't think either had cleaned the whole time they were here. If I can get away from the office long enough tomorrow I'll start in the one kitchen and living room. Monday is laundry day, so I'll be picking that up in the a.m. Enough complaining!
I'm so glad Gerry and Barbara are back. You always seem so much more relaxed when they are there. They are a breath of fresh air to you both.
We hope and pray that you will receive good news on the CT scans. Now the waiting period... The blood transfusions give you added strength, your friends give you an emotional boost, the CT scan is over for this time. Cherish each moment of feeling good and we pray it will last.
Love and prayers,
Carol
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