Nan very weak, please pray

Dear Ones,
I am writing at 9:10 tonight as I intend to go to bed on time what ever that means. Our day has been eventful and alarming as well. Last night we were up 4 times, I was sleeping in our room but could hear every breath Nan took in her hospital bed in the family room below. At 2:30 she decided she wanted to move upstairs so she and I did the things we need to do and stood her up, the pain was so intense in her feet that she could not handle it and sat back down and then laid down in the bed and decided to stay put. At 7:30 this morning she started chilling so gave tylenol, ice packs under the arms, uncovered her and infused the antibiotic right then. Her fever climbed to 102.6, leveled off and then started to slowly decline. After awhile she was normal again. Later she decided she wanted to sit in the chair so once again we did the things to prepare for moving and she put her hands around my neck and I lifted her up that way. I would take a small step back and she would shuffle forward and in that manner we made it to the chair where she stayed for the next 4 or 5 hours. Dana fed her a delicious lunch, Keanna and Nikki came to visit and eat and Keanna announced upon coming in. Grammy I have come to make you feel better, it was totally true. Mid afternoon Nan decided she wanted to trek to the upstairs bedroom with the comfortable bed. It took Dana, Nikki and myself to help her handle it. She walked to the three steps from the family room and we lifted her up for each step, then into a rolling office chair for the short ride to the stair chair, that transition was a tough one but she finally got into the chair and rode it up, then getting her out of the chair into the walker seat was even tougher and she started to go down. We all grabbed and lifted her up causing a lot of pain. She rode to the bedside and climbed in breathing heavily. Before long she was asleep and she has remained asleep most of the afternoon with brief waking moments to say good by to Keanna and Nikki and to have bags emptied and temperature checked. She says the bed is so much more comfortable than her hospital bed and has really rested well with only one shot of dilautid this entire afternoon. She says her entire body feels as if it has been beat up and we are thinking the Sprycel might be the culprit. I sent an email to Dr. Morgan asking what kind of side effects people who take it have. After the 2nd fever in two days I called Dr. Ganey who was on call and he ordered blood cultures be taken tomorrow, Terry is already on it with plans to pick up the correct tubes at a lab in Brentwood at 7 in the morning. We also heard today that a nurse is coming from John Muir to help her bath and assess her needs and a physical therapist is also supposed to be coming. Tomorrow evening our pastor Jim and some of the elders from our church are planning to come and have a special service called prayer and annointing. Years ago when things were very bleak we had the same service and God answered by getting us into the Sutent trial at City of Hope. That trial supressed her tumors for nearly 18 months before failing. We are just seeking God's special intervention in her life and want to avail ourselves of this special service.
Today we have enjoyed and appreciated the messages that have been written to the blog. We heard from very precious people who we know and love, all four messages are heart touching and encouraging to be sure.
Dana and Nikki were both very helpful today with mom. The extra weight which was added due to excess hydration at the hospital has made it much more difficult for Nan to rest or to walk. Her feet are once again very painful due to the fluids in her tissues. We have emptied many beakers of fluid today which means we are starting to get some of the extra stuff off.
Dana has once again prepared spendid food and Nan enjoyed having such good items to eat and drink. In addition Dana has been on a tare to clean cabinets in the kitchen and so many loads of trash have made there way to the dumpster for a morning pickup.
I had an agenda today to complete and have completed none of it, I have worked at my desk a lot but failed to complete appraisals that people are asking for in the morning, yikes! I have bounced up every few minutes to attend to this or that and found it almost impossible to concentrate on work. Having nan so near by and so very weak and ill, thats where I want to be, with her.
So questions that confront me this evening, should I have nan back in the hospital? Should we put off this evenings dose of Sprycel to give her body a chance to bounce back? will skipping ruin the chances of tumor reduction or control? Will we have to contend with a fever tonight? Can Nan find her courage and fight herself back to being on her feet again? I think we were all surprised to find out how weak she was today. It is a shock really.
I took my last dizzy antibiotic this morning and hope what I have in my body will continue until the bugs are gone. I'm finally feeling better this afternoon with less pain in my stomach. What a challenge life is.
Can I ask you to pray tonight for Nan. God knows her full medical history and the current state of things inside, no one else seems to have a clue. So I ask that God will do His will in Nan. My will is that she gradually regain strength, alertness and hope. Thank you for your prayers and thank you Di and Steve Souza for the beautiful flowers that came yesterday, what timing, in the midst of disaster here came beautiful flowers. And Irene your cards are very very special and your emails are always helpful. Art and Pam, I could not manage without your calls of support and love for us both, Mary you are the mother we both wish we always had, you are so special to us and we know your heart of love.
It seems almost impossible that Dana has to leave on Wednesday but she does, I know things will work out but at this point I don't know how yet. We will certainly miss her.

So I say good night, we love each of you and we thank you for everything you do every day.

love

tim and nan and dana