A very sleepy day
Dear Friends and Family,
Its about 11 pm and I'm listening to the sound from Nan's TV upstairs. She likes to go to sleep with the TV on and since I have monitors in two places downstairs one tends to hear the program Nan has on. This one is the movie 51 dates or something like that.
Nan did not come downstairs today, her left foot and thigh hurt so much she could not support her weight when she tried to stand, she did make it over to her recliner upstairs for awhile but then back to bed. Constant nausea is with her. We finished one of the antibiotics today and were very glad to see the end of it hoping that without it in her system perhaps she can start to feel better.
Barbara came from our Tracy SDA church family today and spent the day with Nan. She helped Nan soak her hurting foot in some warm water which seems to help a bit. Sharon suggested a hot pad so when I got home I got it and she has had it on since and is getting some relief from it. Nan had many phone calls this afternoon from family and friends, from the pharmacist at Critical Care confirming tomorrows shipment of new TPN and supplies. Jason, Nikki and Jo all called to say hi. What a difference it makes for Nan to hear from family and friends, what lift it is. We want to say a huge thankyou to Barbara for coming to be with Nan today. I hit the road when she arrived and did an appraisal for a cute little place in Merced, tree lined streets and all. Then back through traffic to home and Nan. She was glad to see me back.
Pam has called a couple times today to check in and to give us progress reports on Ryan who is climbing El Capitan, he is actually camped on the face tonight, left earth with a 90 lb pack on his back. Pam is staying in a little tent nearby and has watched him climb most of the day. This business of parenting never seems to get easier, imagine your son or daughter on the face of El Capitan tonight, yikes. May the good Lord protect him as he climbs.
We received a kind call from Sylvia today, she and Steve have done so much for our family over the years and she continues to read our minds and know just when we need a boost. Not only did she clean house for us to come home to but she is coming tomorrow to be a friend to nan while I go do some work in Vallejo, SF and perhaps Oakland, then I pick up Jan at the Oakland Airport at 4 and head home through traffic to Nan. Thanks in advance Sylvia for your help and company for Nan tomorrow.
I've been getting tiny emails from Art and Connie who are in Greece. Art says they are well and having a good time and getting to know each other better and better. There is nothing like travel to get to know others better.
I'm going to bed, since I started this blog I heard a tiny voice say "oh no" so I raced up the stairs to find that Nan had picked up her little throw up tupperware and it slipped out of her fingers right into the trash beside the bed. She was thinking she needed it. I went ahead and gave her a dose of Zophram IV push in an attempt to try to head off more vomiting.
Please pray for Nan when you read this, pray that God will help solve the vomiting, give her strength to enjoy Jan's visit and help the pain in her thigh and foot subside so she can walk about again.
On the tumor front our friend Irene was able to make contact and get us connected to Jerry Call, a fellow GISTer, actually his wife has GIST. He is an expert on many aspects of GIST and was able to email a wonderful list of steps to take so nan might be able to have a drug that is still in testing and trial, AMN107, on a compassionate basis. There are several steps to take but if our local doctor will help we just might be able to get this drug that Nan needs which might half her tumor growth without having to travel to UCLA when the trial begins in a month or more. It is certainly worth pursuing and we intend to do everything we can to get the drug for Nan as soon as possible. Thank you Irene for your persistent help today.
So now its time to rest and sleep. I hope Nan can do both.
Thank you Lord for this day, may we have many more according to your eternal plan and mercy.
with love
tim and nan
ps the wound care lady finally made it today, a day late and took forever but Nan got the care she needed.
Its about 11 pm and I'm listening to the sound from Nan's TV upstairs. She likes to go to sleep with the TV on and since I have monitors in two places downstairs one tends to hear the program Nan has on. This one is the movie 51 dates or something like that.
Nan did not come downstairs today, her left foot and thigh hurt so much she could not support her weight when she tried to stand, she did make it over to her recliner upstairs for awhile but then back to bed. Constant nausea is with her. We finished one of the antibiotics today and were very glad to see the end of it hoping that without it in her system perhaps she can start to feel better.
Barbara came from our Tracy SDA church family today and spent the day with Nan. She helped Nan soak her hurting foot in some warm water which seems to help a bit. Sharon suggested a hot pad so when I got home I got it and she has had it on since and is getting some relief from it. Nan had many phone calls this afternoon from family and friends, from the pharmacist at Critical Care confirming tomorrows shipment of new TPN and supplies. Jason, Nikki and Jo all called to say hi. What a difference it makes for Nan to hear from family and friends, what lift it is. We want to say a huge thankyou to Barbara for coming to be with Nan today. I hit the road when she arrived and did an appraisal for a cute little place in Merced, tree lined streets and all. Then back through traffic to home and Nan. She was glad to see me back.
Pam has called a couple times today to check in and to give us progress reports on Ryan who is climbing El Capitan, he is actually camped on the face tonight, left earth with a 90 lb pack on his back. Pam is staying in a little tent nearby and has watched him climb most of the day. This business of parenting never seems to get easier, imagine your son or daughter on the face of El Capitan tonight, yikes. May the good Lord protect him as he climbs.
We received a kind call from Sylvia today, she and Steve have done so much for our family over the years and she continues to read our minds and know just when we need a boost. Not only did she clean house for us to come home to but she is coming tomorrow to be a friend to nan while I go do some work in Vallejo, SF and perhaps Oakland, then I pick up Jan at the Oakland Airport at 4 and head home through traffic to Nan. Thanks in advance Sylvia for your help and company for Nan tomorrow.
I've been getting tiny emails from Art and Connie who are in Greece. Art says they are well and having a good time and getting to know each other better and better. There is nothing like travel to get to know others better.
I'm going to bed, since I started this blog I heard a tiny voice say "oh no" so I raced up the stairs to find that Nan had picked up her little throw up tupperware and it slipped out of her fingers right into the trash beside the bed. She was thinking she needed it. I went ahead and gave her a dose of Zophram IV push in an attempt to try to head off more vomiting.
Please pray for Nan when you read this, pray that God will help solve the vomiting, give her strength to enjoy Jan's visit and help the pain in her thigh and foot subside so she can walk about again.
On the tumor front our friend Irene was able to make contact and get us connected to Jerry Call, a fellow GISTer, actually his wife has GIST. He is an expert on many aspects of GIST and was able to email a wonderful list of steps to take so nan might be able to have a drug that is still in testing and trial, AMN107, on a compassionate basis. There are several steps to take but if our local doctor will help we just might be able to get this drug that Nan needs which might half her tumor growth without having to travel to UCLA when the trial begins in a month or more. It is certainly worth pursuing and we intend to do everything we can to get the drug for Nan as soon as possible. Thank you Irene for your persistent help today.
So now its time to rest and sleep. I hope Nan can do both.
Thank you Lord for this day, may we have many more according to your eternal plan and mercy.
with love
tim and nan
ps the wound care lady finally made it today, a day late and took forever but Nan got the care she needed.
posted by Tim Mustard @ 10:55 PM
3 Comments:
At 5:27 AM,
Anonymous said…
Good Morning from beautiful NC!
And it truly is a beautiful day. Like the song, "Nothing could be finer than to be in Carolina in the morning....." What a beautiful state and we love it here.
I'm sorry to hear about Nan's pain in her foot and thigh. It's not fun to walk when you hurt. How nice to have Jan coming. She will help pass the days and entertain Nan while you are out working and from what I hear (I don't know her) she will be a breath of fresh air.
I'm off to take Dad and Barbara to the airport. They love to travel, but checking in is sometimes a problem for them. It's not like it used to be ~ hand them your ticket, check your bags and off to the gate. Now it is electronic check in, security check, shoes off, no sharp objects in the carry ons, no pocket knife, no food service...... Life is hard sometimes at 92.
My prayer for you is no nausea, less pain and more joy in your life today.
Love and prayers ~ Carol
At 8:10 AM,
Anonymous said…
Good Morning Tim & Nan,
What a great thing that You have help coming in this morning so You,Tim, can take care of some business and Nan will be in good hands till You get Home with Jan. Lets hope that the traffic does not present too big a problem.
We have a full week to deal with and are sorry that We have not been able to get over to see You. Clinic,Band Practice, Concerts, Plays , Appointments for minor Home repair etc. We have company coming this weekend Sabbath/Sunday & Monday. Saturday afternoon a Special 50th Annaversary Party to attend: Dear Friends ,Sisters, both married 50 Years this Year. We had our 50th last Year. Hardly seems possible.
This Evening We have Tickets to see "Damn Yankees" at the Stockton Civic Theater, they always do a great job . I hope it is not too long (time wise) I hate sitting more that 2 hours I get really restless. Last Play that We saw there was 3 1/4 hours with two 20 minute intermissions that made for over 4 hours !
We pray that You will have a good day Nan , with less Nausea & more Pain relief. May the Good Lord direct You to the right plan,meds & people that can do You the most good.
Give Jan Our warmest greetings and We will try to get over to See You & Her next week Tue/Wed ?
Love & Prayers.
Bob & Carrol.
At 11:56 PM,
Anonymous said…
Yo Tim,
Tu dA wus uhnuthur grate edukasionl xspeereince.
Just like every other day there is something to learn, an educational experience if you will. The trick however is to not get your emotions too far in front of the experiences. If you do you might get angry, mad or frustrated. Sound familiar? Yeh! Me too. Think how it would be if that emotional energy could be chanelled for good vs ill. All our experiences would just be learning opportunities and each days end would be peaceful and calm. Hey! It could happen.
Lay your burdens down and take Christ's, his burden is light and the journey is easy. Celebrate the joy and relish the peace. God Bless you and Nan!
Wes
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