Dear Family, Fellow GISTers and Friends,
I can't get it to take a title tonight, not sure why but I'm not going to stress over such small things.
We have had an interesting day, we fought fever all night with antibiotics are 2 am and 8 am. Nan woke me with talking disjointed sentences but when I raised a subject she could recognize it and speak to it. While we had no fevers that were 104 last night we never got rid of them either. I had to run to Tracy this morning to do a construction inspection so LeAnn, our dear next door neighbor came over to watch over nan while I was gone. When I returned she said Nan had been hot and cold and was under a blanket. Well that pushed the temps up again. Nan was able to talk on the phone with Dana and Jason but in a feeble way. I tried to work downstairs but was mostly unsuccessful as I have a lot to finish but it needs intense concentration and I just did not have it with Nan in such trouble. At 1:30 Dr. Melynk returned my call and we went over her situation. He thinks we are doing what we can at this point and agrees to stop Sprycel in case it is causing the fevers and also agrees with the new antibiotic we are using. He asked about blood pressure which is OK, heart rate which is normal between fevers, blood work, normal and nothing coming out of the blood cultures. He thinks we carry on hoping to get a hold of the fevers and get them stopped.
This afternoon Nan responded to my idea that she get up into the recliner for awhile. With help she walked to the chair and settled in to snooze, watch TV, talk at times. I left her in the chair for awhile and came back to discover her colostomy bad had exploded all over the chair, I should have emptied it but all day it had had nothing in it and suddenly it took off. So I spent the next hour cleaning Nan, getting her back to bed, changing gown and then turned my attention to the chair, suade material, not sure if I won that round or not. Felt really silly not to keep checking on the bag and Nan had not felt it at all due to being so sleepy.
This evening an order for Tracy came through and they wanted it rushed so LeAnn was kind enought to come back and watch Nan while I raced to Tracy to do the appraisal. On the way home I got to talk to Steve Ahn, recently returned from Russia and then friend Art. I brought Nan a coke iccee but she was not interested and was starting a fever when I got back. When I last checked it we were about 101.9 or so. We have started our routine, ice bags (wings), cold cloth on the head, liquid tylenol and ceiling fan. Lets hope that the fever can be headed off before it gets serious tonight, sleeping most of the night would be nice for a change.
Mary came by today on her way out of town to San Diego for a trip with the girls. It was good to see her and while she was here Nan was pretty subdued and sleepy.
After Nan sat in the chair she was more awake and aware of things with her eyes wide open for awhile. Hopefully that is the direction we are moving although it seems a long ways off.
We are both looking forward to seeing Jason and Jo tomorrow providing little Timothy does not decide to make an arrival early.
So this evening another week closes, last week we had just gotten nan home from the hospital and we were all glad that she was here. Now a week later and so much has happened. I sometimes try to contemplate what God has in mind for us. How does He work and when does He decide to intervene and when not so. We felt led to Sprycel yet we think a side effect of that drug has caused the fevers. The AMN is on its way but how long we don't know. nan has much less pain now but is mostly asleep these days. hard to see whats next.

We send our love and deep appreciation.

Tim and Nan