Nan takes first AMN capsule!

Dear Friends and Family,

Finally this evening after a lot of very hard work by many concerned people Nan took her first AMN107 capsule. It went down smoothly and she was so relieved to get it in hand.

Dr. Melynyk's office called this morning and ask if Nan could come in for a visit with the doctor. So we hurried her out of bed and into the car and to the office. There she signed papers and the Dr. sold us Novartis had shipped the drug yesterday but was not sure where to. After we arrived back at home and nan was settled into her recliner the office called to say the drug had arrived in the Concord office and Gloria would be bringing it out to Antioch. So at 2:45 I picked it up. I then headed to Oakland to do an appraisal and then back to Longs to get prescriptions for Nan and then home to find Nikki and Keanna visiting and eating. Dana had prepared a spread fit for a king or a princess. Keanna handed the pill bottle to her Grammy who opened it and took her first dose. We all hold our breath and pray that it will be helpful with the tumors.

Nan took some Adavan around noon and slept and rested in her recliner until about 9 this evening when John and Dana helped her walk and ride up to bed. She has had a tired but excellent day and is demonstrating more and more strength each day. We did have a fever this morning but this time around it does not seem to hold her down. We have two more days of one antibiotic and 5 days of the other one. Our delivery of TPN and other needed medical supplies arrived a little while ago, that right about 9:45 or so. In a few minutes I will prepare her new TPN for the next 24 hours. I may get to take Keanna to SS in the morning, we'll see how she feels in the morning.

I have included two photos, one of the nice lady handing me the meds and then Keanna handing them to her precious Grammy. This is the beginning of an incredible experience, just even being able to be considered for compassionate use of the drug is pretty amazing and then the staff going through all the steps to get it approved and here, also amazing. We are deeply grateful for everyone involved in the process and especially Dr. Melynyk who was very pleased that it was finally here.

We thank God for His leading and blessings.

love

tim and nan and dana and john

ps yes I know there is a photo of a house again, now if I could learn how to take a photo out of the blog!!