Nan Mustard's Recovery

This blog is a record of Erin (Nan) Mustard's recovery.

Friday, July 27, 2007

Nan takes first AMN capsule!











Dear Friends and Family,


Finally this evening after a lot of very hard work by many concerned people Nan took her first AMN107 capsule. It went down smoothly and she was so relieved to get it in hand.
Dr. Melynyk's office called this morning and ask if Nan could come in for a visit with the doctor. So we hurried her out of bed and into the car and to the office. There she signed papers and the Dr. sold us Novartis had shipped the drug yesterday but was not sure where to. After we arrived back at home and nan was settled into her recliner the office called to say the drug had arrived in the Concord office and Gloria would be bringing it out to Antioch. So at 2:45 I picked it up. I then headed to Oakland to do an appraisal and then back to Longs to get prescriptions for Nan and then home to find Nikki and Keanna visiting and eating. Dana had prepared a spread fit for a king or a princess. Keanna handed the pill bottle to her Grammy who opened it and took her first dose. We all hold our breath and pray that it will be helpful with the tumors.
Nan took some Adavan around noon and slept and rested in her recliner until about 9 this evening when John and Dana helped her walk and ride up to bed. She has had a tired but excellent day and is demonstrating more and more strength each day. We did have a fever this morning but this time around it does not seem to hold her down. We have two more days of one antibiotic and 5 days of the other one. Our delivery of TPN and other needed medical supplies arrived a little while ago, that right about 9:45 or so. In a few minutes I will prepare her new TPN for the next 24 hours. I may get to take Keanna to SS in the morning, we'll see how she feels in the morning.
I have included two photos, one of the nice lady handing me the meds and then Keanna handing them to her precious Grammy. This is the beginning of an incredible experience, just even being able to be considered for compassionate use of the drug is pretty amazing and then the staff going through all the steps to get it approved and here, also amazing. We are deeply grateful for everyone involved in the process and especially Dr. Melynyk who was very pleased that it was finally here.
We thank God for His leading and blessings.

love

tim and nan and dana and john
ps yes I know there is a photo of a house again, now if I could learn how to take a photo out of the blog!!

4 Comments:

  • At 12:15 AM, Blogger Irene Wing said…

    Hi Tim and Nan,
    WOO HOO!!! So glad to hear that Nan received the AMN today! How hopefully we all are that this will be the drug that wil make a big difference in Nan's future. After the wonderful visit you had with Baby Timothy, this was the icing on the cake. It must have been an euphoric experience. We are so thankful to God for this wonderful day. Looking forward to hearing about more good days ahead.
    Love,
    Irene

     
  • At 12:19 AM, Anonymous Barbie said…

    Hi dear friends, YEAH! AMN has arrived. Our prayers will be that it will be very helpful for Nan. She looks very alert in the pictures and it sounds like she is gaining strength each day. God has been listening to all of the prayers on her behalf, I do believe. Thank You God!
    Today we had some extra time so we went to see the movie Hairspray. It was silly/funny. Gerry had a great nap during the show. Mike called while we were at the movies. Today was Ben's birthday and he is now the big 30. He got some new fancy car..to Ben from Ben. I talked to Ethan and he sang Happy Birthday to his dad so I could hear him; it was very sweet and he can carry a tune quite well. He will be 5 in September. Tomorrow we will hear Elder Douglass give part 2 of how the Seventh-day Adventist church started. I feel so privileged that he is a member of our church. He is a blessing and a very fun person. In the afternoon we are going to a health talk by Dr. Hans Diehl (?) at the Antioch church.
    It's way past my bedtime but I just had to let you know that we are excited along with you that Nan has the AMN going in.
    Love to you both, Barbie

     
  • At 5:15 AM, Anonymous roger and carol said…

    Good Morning and Happy Sabbath!

    Another chapter is being written in the book of "Nan's Recovery". Has there ever been anyone who has gone through as many experimental programs as Nan? I remember how hard she worked to get into some of the other programs. I'm sure she has made medical history along with helping others. And as she has said in the past, "It may not help me, but the study might help someone else." I'm sure she has helped herself as well as others with her willingness to be part of different studies.

    We are getting a beautiful much needed rain this a.m.! Maybe we'll get out of this drought yet.

    We wish you the best on the AMN107. May it shrink the tumors and Nan have more strength and less pain daily.

    More Love and Prayers ~ Carol

     
  • At 8:01 AM, Anonymous Bob & Carrol. said…

    Hi from Lodi to the Mustard household,

    How We all are thanking the Lord this morning as We read that the AMN has arrived and soon will be doing it's thing to heal Our Dear Nan.

    We enjoyed the Spaghetti Factory again last evening and are going to a Play at UOP "Long Theatre" tonight. "Thoroughly Modern Millie" wish You could attend with Us. We do so much enjoy Live Theatre.

    How good it is for You to have Dana & John there with You , How much longer will thry be able to stay?

    We had a busy day Yesterday Cleaning all 11 Blinds & 6 Celing Fans in Our house they really look nice now but what a job that is! Also did the Patio Sliders Inside & Out,long over due,seems lots brighter on the East side of the House now.

    We will try to get over to see You some time this coming week and I will bring the ramp tracks that I mentioned and We will see if You could put them to good use.

    Keep getting stronger Nan, and We will keep the Prayers going for the AMN to be effective in reducing the Tumors and pain level.

    Looks like Carrol will be having Carpal Tunnel Surgery on Her hands sometime in mid September. We are waiting on final test results to set it up.

    Have a good Sabbath Day and enjoy Sabbath School with Your Grand Daughter.

    Love You,

    Bob & Carrol.

     

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