Nan Mustard's Recovery

This blog is a record of Erin (Nan) Mustard's recovery.

Tuesday, October 23, 2007

Nan steps out, sits in wheelchair, pleases PT hunks


Dear Family and Friends,

As the evening is winding down and one has time to reflect certain thoughts come to mind. Today we said a reluctant goodbye to Sharon as she flew home this morning, we witnessed Nan encounter the PT guys who gently helped her to her feet, take some steps and then sit in the wheel chair for 10 minutes. Others were ready to change her bed and tidy her up at the same time. Then she got back into the bed at noon, took Adavan and slept for awhile. She deserved it. At this point the game plan is to be able to take her home on Thursday. Both doctors are working toward that goal and ordering those things Nan needs at home. The biggest hurdle is the Dilautid pump. We have heard differing thoughts on the ease of getting that at home. So another bridge to cross. We have had yet another day without fever and she has been awake some in spite of some limited pain moments. She is very aware of what is happening but due to the high levels of Dilautid from the drip she is not totally out of the fog at all times.

Good news on the horizon, Dana arrives tomorrow evening at 6:40 in Oakland. She says she always comes with stitches in her hand and that seems to be true. We will be so glad to see her. Nan just got to talk to her for a few minutes. It seems so good to have Nan be able to use her phone again even though she is a bit weak and tires easily in the process.

We got a call from the doctors office to tell us that they have done all they can to get the drug Nexavar and are waiting now to hear back. We don't want to wait obviously but it is beyond our control so we wait.

It seems a bit unreal, this world we are now living in, staying at the hospital with only an brief stop at the house once in awhile. Grabbing food where we can for the best price we can find, sleeping in short segments at night in less than ideal conditions, hanging on every word the doctors say and hoping for the best in all circumstances.

Please remember Nan in your prayers this evening. She has battled back from being very ill to just being ill, its real progress.

Our hearts go out to Roger and Carols daughter who is having yet another leg surgery this Friday, a surgery which will mean she is on crutches for the next many months. She needs our prayers too.


love from room 3117 where the Roses are blooming out and are beautiful, where the temperature is about 60 degrees on purpose, where reruns dominate the day and where Nan demonstrates daily courage.


tim and nan and marilyn

3 Comments:

  • At 11:15 PM, Anonymous Anonymous said…

    Tim,

    It sounds so much like a military operation. It is all about the logistics. The precious supplies that you have and the enemy doesn't. Thanks to all the suppliers and service workers that call verifiy, re verify and call again to make sure that the right thing gets to the right place at the right time. It is a complex operation and no war is won without being the winner in supplies.

    Fortunatly you have all that in aces! Lucky you! Now as for leadership. It is very important that the followers trust the leader, hear the leader, understand the leader and follow the orders of the leader in a timely fashion.

    Get ready. I have a message from the leader.

    Do not worry about tomorrow just do the things I ask today. I know your needs and will supply everything you need to achieve victory!

    Love to all,

    Your commander in chief

    GOD

     
  • At 7:12 AM, Anonymous Anonymous said…

    The Commander delivered me home safe and sound. Was a quick trip, but worth every minute. Will try to return in a few weeks for another short stay. Please do not make a scene over who gets to sleep in my lawn chair! I am very fortunate to have my brother, Rick, to take care of everything here so I can come and go. I love him more than you will ever know. I wish each of you had such a brother. My sister, Gwen, and my kids help take care of things for me,too. We know why God made families and if any of you have not been in contact with any of yours lately, I urge you to do so.

    Nan is looking up and looking better. Thank you Marilyn, for being there. Marilyn watches Nan like a hawk! I feel she is in safe hands.

    Will call tonight, remember that I love you all. Sharon

     
  • At 10:03 AM, Anonymous Bob & Carrol. said…

    Hi Tim , Nan & Marilyn,

    Good to read that Nan was up a bit yesterday. How wonderful to have Marilyn there for support and watchfull care for Nan.

    We picked My Sister Patty up at Sac Airport yesterday at 2:30. Stopped for late linch on the way home and after lunch on the way to the car Carrol had a bad episode with her Knee. We got her back to Lodi and to the Dr who ordered Xrays(already done) and MRI today at 2:30 then Orthopedist on Thursday. Carrol is not able to put any weight on Her right Leg so it's back to Power chairs, Crutches, etc & Very limited mobility till We see what is going on with Her Knee. Our Family Dr feels that this is not Myeloma related and that would be good news. We will take this one day at a time and Pray that it will be something easy to fix.

    Have a good day,

    Bob & Carrol.

     

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