Stable day, longing for home
Dear Family and Friends,
Nan had a decent night with only a few bouts of pain beyond control. She woke this morning without a big fever and had a bath, PT came and helped her stand up on her own weight, all the other doctors were there too, no word today on the new drug. Our oncology group did not get a call back from Bayer yet so its pins and needles as we wait. The Dilautid drip seems to be helping control the pain and along with Adavan every 4 hours she is pretty comfortable. What an enjoyable time it has been with Sharon and Marilyn there to help encourage her, to listen to her and to help her when she needs to move in the bed or needs new ice water or needs to see a nurse. Sharon has been sleeping in the portable recliner and has found positions to sleep that I would never have thought of while Marilyn has claimed the family room next door and a couch. Our room is very cold, better for nan that way to stave off fevers but the rest of us are cold, well that is except for Marilyn who does not seem to be touched by the icy temp.
I came home about 4 to try to get some backwork done and have been successful but now its 9 and I'm just getting ready to head back to the hospital for the night. Nan wants me there and that settles that issue. Marilyn and Sharon each have a book and when nan sleeps they read or watch reruns. Sharon gets many phone calls since she does run a very successful business back home and Rick is caring for it professionally while she is gone.
We lose Sharon tomorrow as she has to go back to face little things like collecting the money for her home which she just sold, making sure the builders are doing the new house right and she does have those neighbor dogs to wrestle with on a daily basis. We have appreciated her quick trip so much and Nan has reveled in her love and attention. There is no one like Sharon in the world, she is a very special loving person.
So now its time to wrap this up and head back to Concord. Doctors are making noises about Nan being released in the next couple days. We have to make sure we have a way to handle the pain before she comes home and the doctor was looking into that today. She is very tired, weak but determined and still very much in charge of her life. We are all so proud of her and just love her to much hour by hour.
Please pray that the Lord will spring the Nexavar from Bayer, that it might help and that Nan can yet enjoy some quality of life again. Most of all pray that God's loving will be done.
love
tim and nan and marilyn and sharon
Nan had a decent night with only a few bouts of pain beyond control. She woke this morning without a big fever and had a bath, PT came and helped her stand up on her own weight, all the other doctors were there too, no word today on the new drug. Our oncology group did not get a call back from Bayer yet so its pins and needles as we wait. The Dilautid drip seems to be helping control the pain and along with Adavan every 4 hours she is pretty comfortable. What an enjoyable time it has been with Sharon and Marilyn there to help encourage her, to listen to her and to help her when she needs to move in the bed or needs new ice water or needs to see a nurse. Sharon has been sleeping in the portable recliner and has found positions to sleep that I would never have thought of while Marilyn has claimed the family room next door and a couch. Our room is very cold, better for nan that way to stave off fevers but the rest of us are cold, well that is except for Marilyn who does not seem to be touched by the icy temp.
I came home about 4 to try to get some backwork done and have been successful but now its 9 and I'm just getting ready to head back to the hospital for the night. Nan wants me there and that settles that issue. Marilyn and Sharon each have a book and when nan sleeps they read or watch reruns. Sharon gets many phone calls since she does run a very successful business back home and Rick is caring for it professionally while she is gone.
We lose Sharon tomorrow as she has to go back to face little things like collecting the money for her home which she just sold, making sure the builders are doing the new house right and she does have those neighbor dogs to wrestle with on a daily basis. We have appreciated her quick trip so much and Nan has reveled in her love and attention. There is no one like Sharon in the world, she is a very special loving person.
So now its time to wrap this up and head back to Concord. Doctors are making noises about Nan being released in the next couple days. We have to make sure we have a way to handle the pain before she comes home and the doctor was looking into that today. She is very tired, weak but determined and still very much in charge of her life. We are all so proud of her and just love her to much hour by hour.
Please pray that the Lord will spring the Nexavar from Bayer, that it might help and that Nan can yet enjoy some quality of life again. Most of all pray that God's loving will be done.
love
tim and nan and marilyn and sharon
posted by Tim Mustard @ 8:56 PM
3 Comments:
At 10:00 PM,
Anonymous said…
Tim,
I have done a quick genialogical search on Marilyn. Just as I suspected, her ancestors are from Iceland. No wonder she is such a cool chick! The formerly sweet Sharon however had several not so white sheep in her background along with one particularly strange brother-in-law. Whose name I will not mention. So keep and eye on her just in case she goes baaaad.
Love hearing about all the miracles that keep on happening to you and Nan. You are truly blessed.
Wes
At 6:06 AM,
Anonymous said…
Good Morning!
I hope all is well in Concord and Nan will soon be home with her entourage enjoying the comforts of home and her beloved Star. May she have a low pain day.
The good news today is that we are getting our web site back later today. Our web host make a huge error in not renewing our domain name, we lost it. They were fortunate to be able to buy it back and we should be up and running by late today. So, Lakemont does exist after all. Thank you Lord!
We have rain!!! Our lakes are pitiful with such little rain we have had all summer. Those fires are unbelievable! I'm certain CA would welcome a good soaking rain about now. Hurricanes, floods, fires, earthquakes, drought ~ yes, Jesus IS coming soon.
May the peace of God be with you today.
Love and prayers ~ Carol
At 9:54 AM,
Anonymous said…
Hi Tim: Could you email me at my home email with the address for the Tracy church for donations to the recovery fund? I have a little packet to send there from our class and promise of more to come. Plus I have another little envelope I will be mailing to your home address from the class as well.
We had a great reunion and the evening program on Sat night opened with music from the Tim Mustard Sings album "How Big is God?", followed by "Swing Low, Sweet Chariot" by the Senior Quartet. It was very cool and brought a big ole lump in to my throat. Many thoughts and prayers were lifted on your behalf and your name came up so many times. It was an amazing weekend and I'm so sorry you and Nan weren't able to be with us. I also realized this morning when I tried to call you that I don't have your correct phone number so if you could get that to me as well, I'll update. I will also email you a picture of the group when I get home and write up a little "info sheet" so you can see what we're all up to.
We're all thinking of you and my Mom sends her love.
Judy (Cate) :)
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