Nan Mustard's Recovery

This blog is a record of Erin (Nan) Mustard's recovery.

Thursday, February 22, 2007

And on and on and on....

Greetings from room 316,
This has been an interesting day to say the least. Nan sounded good on the phone this morning but by the time I arrived she was very sleepy, she slept most of the morning being only interupted for meds, vitals, doctor visits etc. Around noon she got up and into the recliner. She settled in with blankets, her robe and found a comfortable place. She fell asleep again and slept for hours. At the same time her temp was on the rise, moving from 99 to 100.2 to 102. At that point the nurses went into action, called the house doctor who ordered urine tests, blood tests and a bit of tylenol. But even before the meds began to work the fever began to fall. She is nearly normal now. Also just at the point this afternoon when we were about to take a short walk her heart rate resting was 144 so the walk was put off for another day. Her creatines had fallen to 2.8 which is quite dramatic and both potassiumand magnessium were in the normal range. She has had no nausea at all today.
This evening I brought her up a bit of tortilla soup and some pretzels which she had along with some non descript soup the cafe sent up. She also had some milk and is drinking bottled water more each day. Nan has been low energy today, preferring to sleep and lie low. Anita, the picc lady came to try to unplug her red line so blood could be drawn through it and was some what successful. She is really a very interesting person and does a great job with the picc lines. Nan has been told how the nurses are to handle her picc line but most of them try to get by without doing it right, Anita has it written on the wall and Nan just points to it and then the nurses do it right. Sort of funny to watch. We've had some very good nurses lately, attentive to Nan's needs and very caring, most are fascinated by Nan's medical adventures. None so far have ever heard of GIST before. So we have to educate each of them so they will give the proper care.
We are thankful for no nausea, for lower creatines but concerned about the higher than normal heart rate and fevers.
Both Nikki and Jason have talked with their mom, so has Sharon, Pam, Jo, Mary. When you call Nan may sound out of it sometimes but don't be put off by her voice. She is glad to hear from you and your call helps a lot.
Well as our evening winds down I want to let you know once again how much we treasure your contact with us. We are lifted by knowing you are praying for Nan and care for her.
Our prayer tonight is for lower heart rate, for freedom from fevers, for more energy and for good outcomes from the blood work.
Sometimes it seems like it will be forever before Nan can be released from the hospital.
Lord give us patience and please hurry up about it. We have so much to learn yet from our Loving Father.

So good night good friends and wonderful family, we love you all

tim and nan

2 Comments:

  • At 12:28 AM, Anonymous Anonymous said…

    Tim,

    Just your basic day today. Not much to write about. Got a letter stating that I had won a $1,000,000 from publishers clearing house! The bank was not impressed with the fax check I gave them so on the whole I am just even for the day. Just like Nan a little hot and a little cold which averages out to about even.

    This racing heart thing. Have you noticed that it only happens mostly when you are in the room? You should investigate this immediately to see if in fact there is a correlation. Start by checking the mirror, maybe a little hair adjustment and then on the the cafeteria. Sit near the door and smile at the women that come in. If 3 out of 5 women smile back you know what you are going to have to do. Yes, you will have to wear a surgical mask when you are in the room with Nan. This is for her protection until she can rid herself of the infection that is causing these temperature spikes, especially when you are in the room.

    We are continuing to pray about the heart rate issue and you health as well!


    Wes

     
  • At 4:08 AM, Anonymous roger and carol said…

    Hi Tim and Nan,

    I know you are concerned about the ups and downs ~ we all are. At least you are not afraid to tell the nurses what's normal and what's not. You are your own best advocate. Keep up the good work.

    Our prayers continue on your behalf. May you have peace knowing that God loves you more than any of us are able to.

    Continued Love and Prayers ~ Carol

     

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